Anonymous
Anonymous means people will not identifiable in any output from the PARTNERS2 research study. All participants will be allocated a unique identification (ID) number at the start. All the data participants provide to us will be stored by the research team against this ID number not their name, address or date of birth. All summaries written using data collected in PARTNERS2 will ensure no person or institution is identifiable in anything that is published.
Care Partner
Care Partner is the name given to our specially trained mental health professionals. As well as having a background in roles such as psychiatric nursing or social work, they will be trained to work with participants in a way which is recovery focused. They will offer coaching, and support participants to make changes to their lives. These changes will not just be based around mental health but also physical health and general well-being.
Coaching
Coaching is one-to-one support aimed at helping another person make improvements to their life and health. It involves listening to wants and needs, and giving suggestions as to how changes can be achieved. The person who is coaching will be an advisor and a source of support, and the person they are supporting will decide which are the best actions for them to take.
Collaborative Care
Collaborative care is a special type of care which aims to help different healthcare professionals work together. In the PARTNERS Service, we hope to create closer relationships between general practice professionals (GPs, practice nurses) and specialist mental healthcare professionals, by putting mental healthcare professionals in surgeries. Collaborative care also aims to work in partnership with the person receiving it, and those closest to them, to help understand their needs. We believe that this will help ensure better care for people with ongoing mental health needs.
Confidential
This means that any data collected about participants through looking at medical records or that participants provide in interviews with a researcher is kept private. We will not share with anyone outside of the research team the data provided to us unless we have to do so because of safeguarding concerns. There are rules governing this and confidentiality would only be broken because of a duty of care towards the participant or another individual. Participants would be told if confidentiality was broken.
Informed Consent
Informed consent is how we get permission from participants who want to take part in the study. It is called informed consent because we will only ask participants to sign to say they want to take part once we are sure they understand the study and what will happen.
Lived Experience Advisory Panel (LEAP)
Lived Experience Advisory Panels are groups of people who have experience of ongoing mental health needs, who contribute their ideas and opinions in research. This may be because they have a diagnosis themselves, or care for people who do.
The National Institute for Health Research (NIHR)
The National Institute of Health Research is the government organisation which runs research within the NHS. It funds and helps coordinate research on things which could be brought into practice within the NHS.
Ongoing Mental Health Needs
Ongoing mental health needs is the term we prefer to use to describe people with a mental health diagnosis such as schizophrenia, psychosis, bipolar.
PARTNERS Service
The PARTNERS Service is the name we have given to the new type of care we will be testing in this trial. This will involve having someone experienced in mental health care placed in GP surgeries, to see people with ongoing mental health needs.
PARTNERS2
PARTNERS2 is the name of the research programme that this trial is a part of. We did lots of research before conducting the trial, and if you would like to find out more, please visit the University of Birmingham website which has more information on our work: PARTNERS2 Website.
Randomised Controlled Trial (RCT)
In a randomised controlled trial the effectiveness of a treatment or service is tested by comparing it to what is currently available or when compared with no treatment.
Service User Researcher
Service User Researchers are researchers working on PARTNERS2 who have research qualifications and experience, and also personal experience of contact with mental health services. They use both research expertise and expertise from experience in using mental health services in their job role within PARTNERS2.
Well-being
Well-being is a way of thinking about a person’s overall sense of themselves as healthy and happy, leading the kind of life they want to lead. Well-being includes looking at physical, mental, emotional and social health, to understand each individual as a whole person whose needs must be met in a range of different ways. The five ways to well-being are reported to be: give; connect; keep learning; be active; to take notice.